Some good news to share which we will hope will change the face of Rett and Rett-like disorders within the health and social care sectors in the UK. A collective voice creates stronger communities #togetherwearestronger #curecdkl5
Therefore we are delighted to announce the formation of the Rett Disorders Alliance of the UK.
The Rett Disorders Alliance consists of Charities or patient groups which have direct or indirect involvement with issues relating to the management of symptoms, treatments or general condition of people with Rett and Rett-like Disorders in the UK.
We are pleased that CDKL5 UK is part of this newly formed Alliance and look forward to working together with the other groups involved to collaborate on shaping a more positive future for people with Rett and Rett-like Disorders in the UK.
CDKL5 UK; Reverse Rett; Rett UK; Cure Rett; Reverse MECP2; FOXG1 UK; Rett Education UK